Jennie DiLemmo

Welcome to my blog! I want to share information and experiences that I am having while fighting cancer. Not only do I want my supporters to have updates from me, but I want to make this therapeutic for myself. I'm insistent on being positive during my journey to health, but there are obstacles and moments of sadness. I will be raw and extremely truthful; expect the good, bad, and ugly!
Feel free to comment on anything. Perhaps we will all learn new things, including me, while climbing up the positivity ladder to health!

Friday, January 13, 2012

Trying to fix things

My brain must be functioning a little differently these days - perhaps it might be going back to normal?  Brain normalcy would be nice for some of us :-).  Anyway two things I've been thinking about and trying to address 1). the level of pain has increased quite a bit with this chemo treatment and 2). I haven't been able to be physical to build up muscles and stay strong.
I had treatment yesterday so I discussed with my nurse (love her!) about the pain management.  We of course had discussed Oxycontin extended release, which is different from the Percocet that I take.  Percocet is a combination of Oxycontin and acetaminophen and is taken every 4 hours as needed.  The Oxycontin extended release drug you take regularly every 12 hours and it works and stays in your body that entire time to deal with pain.  Michael has always been concerned about this drug since it is a narcotic that is know to cause massive addiction problems.  Michael and I discussed all the benefits and concerns about the Oxycontin and I'm going to start using it.  The neurontin was great for the nerve pain once we figured out the dosage, so hopefully I can experience the same benefit with the Oxycontin.  One issue that freaks me out is that once the Oxycontin is working in a regular fashion, it will take roughly 48 hours to work regularly, if I still have pain issues that occur I can take the Percocet!  That seems very weird to me - although I have had experiences of being on Percocet and there is still massive amounts of pain.  I guess I'll figure it out.
It has been a very long time since I exercised or did much of anything!  It is unfortunate and despite the fact that Dr. S tells me to do whatever I want there are a lot of things my body can't do anymore.  I did have my Radiation Oncologist disallow many activities that had to do with my upper back where I had radiation; I wasn't allowed to pick up many things, including Colton, or stretch like I normally do.  So I discussed this with the nurses and received communication with Penn Caring Way since they have nurses and physical therapists that would come to the house.  I'm mostly focused on having someone work with me knowing about the tumors and initiating exercises and stretches that are safe for my body.  I'm sure that what I do currently is not appropriate so it would be great to have someone give me the right exercises so my body starts building up again!
I did have a nurse come by today to initiate the program and she already suggested an abdominal brace since that large tummy tumor is affecting the back and causing the pain.  I think this program will be beneficial in many ways and it will occur weekly.  I'm really hoping that I gain some strength when I hit success and health so it won't take too long afterwards to get back to normal!  I do realize that even after getting health it is going to take some time to get strength, energy, and many other things, but I'm completely focused on working towards it!         

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